Parliament House TS Morning Tea
October 23, 2017.
The Parliamentary Friendship Group for Tourette Syndrome meeting was well attended by Federal Ministers, MP’s and Parliament House staff members. A large number of children and adults touched by Tourette Syndrome (TS) and their families were present. It was a successful morning tea, highlighted by a conversation between the Hon Greg Hunt, Minister for Health and Sport and ACT primary student Marc Milne (10). Marc’s presentation was impactful and demonstrated how much TS affects the quality of his life. He shared how much he would like people to understand his condition. Greg Hunt was impressed by Marc’s short TS movie he made at school. After the morning tea, Tourette Syndrome Association of Australia President Robyn Latimer and Marketing Director Rosita Sunna had the opportunity to meet with the Hon Jane Prentice, Assistant Minister for Social Services and Disability Services, the Adviser to the Hon Greg Hunt MP, Minister for Health and the Assistant Adviser to Senator the Hon Simon Birmingham, Minister for Education and Training.
Download the full press release here.
Adam Ladell announced as TSAA Ambassador. Adam spoke at our National Conference in Canberra 13th May 2017
Chris Crewther MP announced as first ever Patron for Tourette Syndrome Association of Australia
Following The Parliamentary Friendship Group of Tourette Syndrome launched in the House of Representatives, Canberra on 9 November 2016 with MP Chris Crewther and Senator Skye Kakomschke-Moore, Chris Crewther MP has been endorsed by the executive committee to be a Patron for TSAA. After 27 years of action for Tourettes this is a very historic moment to be recognised in national parliament. We look forward to working together with Chris, who has Tourette Syndrome and therefore a personal interest in our success and future.
Above: Dr Mike Freelander MP, Robyn Latimer President TSAA, Luke Gosling OAM MP, Senator Skye Kakomschke-Moore, Chris Crewther MP, Adam Ladell, and Jason Wood MP
Download TSAA’s 2016 CAMP Tourettes Press Release to share our message.
We are seeking support for our Camp Fundraiser — Donate Here
Help us raise $30,000.
Why? To continue our annual camp for families all over Australia to meet others just like them.
TSAA has just run it’s 4th annual camp—we need to raise $30,000 to ensure we can book again for next year. We only need 1000 x $30—we can do this with your help.
#I’m Just Like You CAMPaign
To give an inside view, TSAA created a 3 minute video with children and families affected by TS while attending a previous annual camp. The input of the children themselves determined the content—from their perspective and personal experiences.
TSAA is the only organisation in Australia committed to supporting people effected by Tourette Syndrome. TSAA is a volunteer, self funded registered charity. After 27 years of campaigning and spreading awareness most people in the community have now heard the term Tourettes—but few have a true understanding of what it means.
Download TSAA's 2016 Awareness Week Press Release to share our message.
Our “Every Brain Tics Differently” campaign consists of a kit for educators. The positive words—PARTICIPATE, STATISTICS, TACTICS, ECLECTIC, REALISTIC AND ARTICULATE, playfully provide direction for families and educators to better understand and proactively support TS.
Download TSAA's FREE Every Brain Tics Differently Kit NOW!
Welcome to the Tourette Syndrome Association
of Australia Inc.
Tourette Syndrome, (TS), is a neurological disorder characterised by involuntary, irresistible body movements and vocalizations. It is complex and individual in its effect. See What is Tourette Syndrome? for a more detailed description.
People with TS seek understanding and acceptance. This website is designed to educate and inform those wishing to know more about this complex disorder.
An Introduction to life with Tourettes
The above video was created in 2008 by TSAA for our awareness campaign. As TS is 3 to 4 times more common in boys than girls and usually diagnosed around age 8 or 9, we focused on an 8 year old boy to tell the story. We chose to portray a mild to 'average' case to counter balance the more severe cases normally shown in the media. TS is a spectrum disorder making it important to represent the full range of cases. TS symptoms vary from mere aggravation to severe debilitation.
TS was first described in 1825 by French physician Itard in relation to a French noble woman Marquise de Dampierre, who exhibited strange body movements and peculiar vocalisations and obscene remarks from the age of seven.
In 1885 George Gilles de la Tourette began research into Tourette Syndrome being the first to connect multiple, complex and varied symptoms forming a syndrome. Dr Tourette named the syndrome 'Maladie des Tics' which was later named in recognition of his discovery, and called 'Gilles de la Tourette' — so we have known about it for a long time, however even today it still remains misunderstood by many.
Appropriate medical care can help control symptoms, while understanding and acceptance can accomplish even more.