Research Study Promotion Guidelines

 

Tourette's Australia welcomes opportunities to support high-quality research relevant to people living with Tourette syndrome and tic disorders. As Tourette’s Australia receives a high volume of requests to advertise research studies, priority will be given to research that advances knowledge in the field and has clear potential benefit for the community.

 

To help protect the interests and wellbeing of the community, all requests to advertise or recruit for research studies through Tourette’s Australia are reviewed by its Medical and Research Advisory Committee. These guidelines outline the process and criteria used to assess requests for research promotion.

 

Scope

These guidelines apply to requests to advertise or recruit participants for:

  • surveys and questionnaires

  • interviews and focus groups

  • clinical or intervention studies

  • student research projects, and

  • other research activities relevant to the Tourette syndrome and tic disorder community.

 

Requests may include promotion through Tourette’s Australia newsletters, website, social media, member communications, or events.

 

Review Process

All requests will be reviewed by the Tourette’s Australia Medical and Research Advisory Committee, which considers whether the proposed study is scientifically, ethically, and community appropriate.

 

Researchers seeking promotion are asked to provide:

  • a plain language summary of the study

  • information regarding participant involvement

  • ethics approval documentation where applicable

  • recruitment materials

  • investigator and institutional details

 

The Tourette’s Australia Medical and Research Advisory Committee may approve the request, request further information, approve subject to modifications, or decline the request. Tourette’s Australia retains final discretion regarding whether a study is promoted through its channels.

 

Review Considerations

In reviewing requests, the Medical and Research Advisory Committee may consider:

  • the scientific quality and relevance of the study

  • ethical oversight and participant protections

  • potential benefit or impact for the Tourette syndrome and tic disorder community

  • participant burden or risk

  • use of respectful, inclusive, and non-stigmatising language

  • alignment with the values and mission of Tourette’s Australia

 

Important Information

Approval to advertise a study through Tourette’s Australia does not constitute endorsement of the study, intervention, findings, or researchers. Tourette’s Australia reserves the right to decline or withdraw promotion of any study where concerns arise regarding ethics, participant safety, scientific integrity, or community impact. Researchers must not imply endorsement by Tourette’s Australia without prior written permission.

Please submit your research request to info@tourette.org.au